Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

Patron Jason Manford       

 

Contacting your MP

You may feel that you would like to write to your MP, MSP (Member of Scottish Parliament) or MEP (Member of the European Parliament) about the extension of the Newborn Screening programme in the UK.

 

There is no doubt that the families of children affected and members of the public can make a real difference in raising the profile of newborn screening and the need to extend the Newborn Screening programme in the UK, by writing personally to their MP.  It is always advisable to write to your own Constituency MP.  With that in mind, there are several points to remember when writing a letter.

Tips on Writing Letters About Newborn Screening Issues

  • If you have a child with a disorder that could have been detected and treated earlier through newborn screening, include a photo of your child
  • Identify your child by name
  • Include your personal story
  • Identify yourself as an ordinary member of the public, a family member, a health professional or an advocate
  • Include a return address on the letter
  • Personalise the letter to show your depth of concern
  • Be positive and respectful. One of the largest mistakes a family can make in dealing with professionals is to appear to be attacking the person
  • Be clear, stating exactly what is wanted from your MP
  • Ask for a written response that states their position on the issue
  • Thank them for his/her time on the issue
  • Try and keep the letter to one page if possible
  • Show that you are familiar and knowledgeable on the subject
  • If necessary, you can email patroberts@savebabiesuk.org for help with your letter
  • Send a copy of the letter to the appropriate organisations involved in the issue
  • Send a 'thank you' when you receive a response
  • Encourage your friends and families to send letters too

Other websites containing helpful information on contacting your MP

Latest news

 

24/07/2010: Congratulations and thanks to Anne Parker, who has now completed her sponsored walk along Hadrian's Wall and raised £1000 for Save Babies UK. You can still donate by visiting her Just Giving page.

26/06/2010: Executive Director Pat Roberts gave the keynote speech at the PerkinElmer Newborn Screening Conference in Finland on June 21-22. Read more...

28/05/2010: Congratulations to Jason Manford, who was officially announced as the new presenter of The One Show. [BBC]

01/05/2010: Thanks to the Ladies Association of British Barbershop Singers (LABBS) who have adopted us as their charity for 2010.

05/02/2010: Save Babies through Screening Foundation are pleased to announce the formation of the Patient Advocacy for Newborn Screening Group (PANS) in the United Kingdom. Read more...

 

Coming up

  

September 2010

Newborn Screening Awareness Month

 

 

[previous news stories]

  

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