Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

Patron Jason Manford       

 

Events

Blazing Saddles 2011

Northern Marine Management, along with other friends such as Brantas UK, Stena Bulk, and Concordia Maritime, have sponsored a team of stalwart pedallers to raise money for good causes since 2006. For their 2011 challenge in September our brave boys Bob Hossack, Tom Ferguson, John Angus, and Michael Brown are cycling through Scotland to raise funds for Save Babies UK. Also on board is Ted Mac, the well travelled bear. Without his map reading skills all would be lost, and without the inspiration of Melanie MacPherson this cycle ride would not get done. You can sponsor the team at their Just Giving page: www.justgiving.com/Gretna-to-Groats-2011

 

Jason Manford on Tour

Our Patron Jason Manford is generously allowing us Save Babies UK to make collections at some of his tour venues.

 

The Save Babies team at Jason's gig at the Doncaster Dome on 23rd July 2010

L-R: Mark Allsopp, Laura Brompton, Jason Manford, Heather Brompton, Kirsty Noon

 

For more tour dates in 2011, please visit Jason's website. Keep an eye out for members of our team at the gigs, and please come and say hello!

 

Kara Sennett made a charity parachute jump in April 2011 to raise money for Save Babies UK, in memory of Frankie Forgione who died of Krabbes disease on 1st January 2011.  Please show your support by sponsoring Kara at her Just Giving page: www.justgiving.com/kara-sennett0

 

Please email patroberts@savebabiesuk.org if you are planning an event so that we can publicise it on the website.

 

Thank you for your support

Latest news

 

09/12/2011: Pat Roberts features in The Yorkshire Evening Post [here]

27/11/2011: The Save Babies UK Annual Report for 2010/11 is now available to view [here]

25/11/2011: Our Autumn newsletter is out now! You can download it by clicking [here]

21/08/2011: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

09/04/2011: The new PANS (Patient Advocates For Newborn Screening) website is now live...  PANS

 

 COMING UP...

 

Rare Disease Day, 29 February 2012

 

 Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012

[more info]

 

Newborn Screening Awareness Week, 2-8 September 2012

 

[previous news stories]

  

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Registered Charity 1133080, Scottish Charity Registration id SC042501

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