Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

Patron Jason Manford       

 

Family Stories

 

Evie Beth Sugden
Evie Beth Sugden
Read Jack MacPherson's story Read all about Rufus Smith...
Jack MacPherson Rufus Smith
Hi, I'm Madison Faith Tierney from the USA. I'm a Krabbe child who was transplanted at birth. Please read my story... Read Scarlett Rose Fedorak's story
Madison Faith Tierney Scarlett Rose Fedorak
See Frankie Forgoine's story Read Gwen Haycock's story
Frankie Forgione Gwen Haycock
See Daisy Sofia Hamid's story See Seth Morris's story...
Daisy Sofia Hamid Seth Morris
   

Latest news

 

09/12/2011: Pat Roberts features in The Yorkshire Evening Post [here]

27/11/2011: The Save Babies UK Annual Report for 2010/11 is now available to view [here]

25/11/2011: Our Autumn newsletter is out now! You can download it by clicking [here]

21/08/2011: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

09/04/2011: The new PANS (Patient Advocates For Newborn Screening) website is now live...  PANS

 

 COMING UP...

 

Rare Disease Day, 29 February 2012

 

 Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012

[more info]

 

Newborn Screening Awareness Week, 2-8 September 2012

 

[previous news stories]

  

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Registered Charity 1133080, Scottish Charity Registration id SC042501

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