Reports

• Save Babies UK Annual Report 2010/11 has now been published. Read more...

• LSD World Symposium, 15-18th February 2011. Read more...

• To coincide with Rare Disease Day on February 28 2011, RDUK released a new report outlining recommendations for a strategy for rare diseases:  Improving Lives, Optimising Resources: A Vision for the UK Rare Disease Strategy.

• Children’s Health Conference, November 2010. Read more...

• Rare Disease UK have published a new report: Experiences of Rare Diseases: An insight from patients and families.  Read more...

• The Scottish Lysosomal Disease Conference, Edinburgh, September 2010. Read more...

• Children’s Health Conference, November 2010. Read more...

• Save Babies UK Annual Report 2009/10 has been published. Read more...

• PerkinElmer Annual Newborn Screening Seminar in Naantali Finland, 19-22 June 2010. Read more...

• Save Babies Through Screening Foundation are pleased to announce the formation of the Patient Advocacy for Newborn Screening Group (PANS) in the United Kingdom. Read more...

• International Society for Neonatal Screening Regional Meeting, 26-28 April 2009. Read more...

• Newborn Screening: Toward a Uniform Screening Panel and System Report. Read more...