Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

Patron Jason Manford       

 

Children's Health Conference 2010

 

The Children’s Health Conference 2010 was held at the Queen Elizabeth 2 Conference Centre in London on 23rd November 2010. Professor Lord Robert Winston and Dr Mark Porter jointly chaired the conference, and the opening address was given by Anne Milton MP, Parliamentary Under Secretary of State for Public Health.

 

During the conference, an hour long workshop titled Newborn Screening Expansion Perspectives, facilitated by conference sponsors PerkinElmer, was well attended by delegates.

 

Dr Brad Therrell, of the National Newborn Screening Genetic Research Programme in Austin, Texas, USA, gave a very interesting presentation on the historical background of the extended newborn screening programme in the USA and outlined the step changes and successes that had been achieved over recent years in terms of child health. 

 

Dr Mike Henderson, Consultant Paediatric Biochemist from St James’s University Hospital Leeds spoke on some of the enhanced technical developments in newborn screening laboratories. 

 

Pat Roberts of Save Babies UK spoke on the  current position in terms of newborn screening in the UK, comparing the UK to  other European member states who are extending their newborn screening programmes, and to  other countries with similar health systems to our own.   Pat outlined the importance of extending our newborn screening programme from a patient advocate perspective, including the many issues surrounding newborn screening and work that was being done to address these.  Pat informed delegates of the work that was being undertaken to influence policy making.  She explained the significant work being done by the UK Patient Advocate for Newborn Screening Working Collaborative.

 

December 2010

Latest news

 

30/03/2012: Read more about the Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012  [here]

09/12/2011: Pat Roberts features in The Yorkshire Evening Post [here]

27/11/2011: The Save Babies UK Annual Report for 2010/11 is now available to view [here]

25/11/2011: Our Autumn newsletter is out now! You can download it by clicking [here]

21/08/2011: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

09/04/2011: The new PANS (Patient Advocates For Newborn Screening) website is now live...  PANS

 

 COMING UP...

 

 Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012

[more info]

 

Newborn Screening Awareness Week, 2-8 September 2012

 

[previous news stories]

  

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