Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

 

Previous News / Website update history

05/02/2010: Save Babies through Screening Foundation are pleased to announce the formation of the Patient Advocacy for Newborn Screening Group (PANS) in the United Kingdom. Read more...

06/01/2010: Thank you to everyone who joined us at the Sing To Save Babies concert in December.

02/09/2009: Save Babies UK congratulates Malena and Martyn Bathurst on the birth of their daughter Lilia, born on 15th August. Lilia is sister to Lucas who has Krabbe Leukodystrophy.

01/09/2009: September is Newborn Screening Awareness Month. Please take a few moments to learn more, or help support our efforts by making a donation.

25/08/2009: Save Babies UK would like to offer our congratulations and good wishes to Jason Manford and his wife Catherine on the birth of their twin daughters on 20 August 2009.

23/08/2009: Save Babies UK would like to welcome the arrival of our Vice Chair's new baby boy Oliver David MacPherson, who was born on 13th August 2009 and offers warmest congratulations to Melanie and Scott.

12/06/2009: Added Evie Sugden to the Family Stories section.

01/05/2009: Pat Roberts reports from the International Society for Neonatal Screening Regional Meeting in Prague, 26-28th April 2009.

31/03/2009: Karen MacPherson is running the Women's 10K race in Glasgow to raise funds for Save Babies Through Screening. You can sponsor Karen by visiting her Just Giving page.

22/03/2009: read all about our recent event: Two Big Boys, in Loving Memory of Two Little Boys.

18/03/2009: you can now support us by making a donation at Just Giving.

08/03/2009: Krabbes Disease and Leukodystrophy definitions added to the site.

02/03/2009: text on Home Page updated.

21/02/2009: Added Madison's Story to the Family Stories section.

30/12/2008: Fancy Dress Football tournament at the Goals Soccer Centre, Kirkstall. Please visit our EVENTS page for more information.

18/11/2008: Save Babies Through Screening Foundation is thrilled to announce that Jason Manford, TV comedian and entertainer, has kindly agreed to become our Patron. We are overwhelmed that Jason is lending his valuable support to our work. Welcome to the team, Jason!

03/11/2008: Added Gwen's Story to the Family Stories section.

18/10/2008: updates to About Us page. Jack's Story added to Family Stories section.

07/10/2008: Two Big Boys, in Loving Memory of Two Little Boys. Please visit our EVENTS page for more information.

29/09/2008: Announcing our first two official fund-raising events: the 2nd Annual Jack MacPherson Race Night in Glasgow, and a Halloween Fun Day in Yeadon.

16/09/2008: We are delighted to announce the launch of our new UK website, and mark the 10th anniversary of Save Babies in the USA.

 

 

 Latest news

 

05/02/2010: Save Babies through Screening Foundation are pleased to announce the formation of the Patient Advocacy for Newborn Screening Group (PANS) in the United Kingdom. Read more...

06/01/2010: Thank you to everyone who joined us at the Sing To Save Babies concert in December. We raised £2500!

 

Coming up

  

February 28th 2010

Rare Diseases Day 2010

 

 

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