Save Babies Through Screening Foundation UK, A Resource on Newborn Screening

Patron Jason Manford       

 

Working Groups

 

  • UK Lysosomal Storage Disorder (LSD) Patient Organization Collaborative. Read more...

  • Medicines for Children Research Network (MCRN) and the Inherited Metabolic Disorders (IMD) Clinical Studies Group. Read more...

  • Rare Disease UK – Prevention and Diagnosis Working Group. Read more...

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 
 

Latest news

 

09/12/2011: Pat Roberts features in The Yorkshire Evening Post [here]

27/11/2011: The Save Babies UK Annual Report for 2010/11 is now available to view [here]

25/11/2011: Our Autumn newsletter is out now! You can download it by clicking [here]

21/08/2011: Please support 12 year old Seth Morris in his fight for Newborn Screening. Click for more...

09/04/2011: The new PANS (Patient Advocates For Newborn Screening) website is now live...  PANS

 

 COMING UP...

 

Rare Disease Day, 29 February 2012

 

 Saving of Lives Through Newborn Screening Celebratory Event,  Westminster 25th April 2012

[more info]

 

Newborn Screening Awareness Week, 2-8 September 2012

 

[previous news stories]

  

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visit the Krabbe's Kids Family Message Board

 

Registered Charity 1133080, Scottish Charity Registration id SC042501

© 2008-12  www.SaveBabiesUK.org :: website design by PurplePirate :: pages last updated Monday February 06, 2012